The Night Air

Life on the southern Gulf Coast of Florida is pleasant for a portion of the year, when on the subject of weather. When I moved to South Florida in the early ’80’s we enjoyed it most of the year, and the few hottest months were July thru September. Then the most refreshing, crisp and dry air would blow in and it would be blissful. Cool mornings, maybe a light sweater , warm afternoons in Tee Shirts and Tank tops, and shorts – always shorts. Then in mid-December thru the beginning of February, a cold snap, which in Florida means below 50.

In the first 20 years I lived on the east coast of Florida, in a “little” town called Port Saint Lucie, which no one had ever heard of. (It now has more people than West Palm Beach.) Anyway, that fact is only significant to this post in that the climate may have been a tiny bit different to where I live now. I did come over to this city fairly often, tho’, because my Grandparents lived here. When I did, it was always pretty much like what we had across the state. Bearable, enjoyable, habitable.

I spent about 10 years away during my marriage, but visited often enough to know that the summers seemed to be warmer, and the winters colder. I never thought much about it – everyone has air conditioners here, and I was young enough not to let the temperature effect me, one way or the other. But then I moved back to Florida, to PSL, in the late 90’s. We had never had a hurricane in that town, going back 50 years, then in 2004 we had 2, back to back, and suddenly we all were faced with the reality of climate change. Sure, I had been thru major Tropical Storms and Depressions, and many torrential rainfalls. I thought a hurricane was pretty exciting stuff…at first. Then I lived thru one.

The thing is, one can not really accurately convey the real experience of living thru a hurricane. You can get close to it, thru video footage these days. However, you only see a snippet. These things go on for 10, 12, 14 hours at full peak sometimes, when it hits dead on. You go mad with that squealling, screaming, demonic wind tearing at your dwelling. You think you are prepared as you hunker down with some snacks. You watch the progress of the storm on TV as it marches closer, and the rain begins, and a little knot of tension niggles in your tummy.

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Oh, it won’t be so bad, Dad says with a pat on your shoulder. Just a little blow… Then the power goes out and the hours go by in eerie flashlight glow, until you decide to conserve battery. As the wind starts to pick up more, you peer outside thru the hurricane shutters, and your nerves start to fray as you see your favorite hibiscus totally denuded, and your palm trees bending in impossible ways. More hours pass, the lack of AC has caused everyone to drip with sweat, and you must not open the fridge because all the food will spoil. Hopefully the coolers you filled with ice and provisions will last.

Then you try to sleep. But that wind, that screaming wind- you realize that other sound you hear is your shingles blowing off, and your neighbors shingles pelt you house like gunfire. A tree falls with a horrible crash onto the porch, but you are helpless. Mom is crying, the dog is frantic, the heat is sweltering, the noise is deafening. When will it end?

You doze for what seems like a second, than a horrible loud creaking begins. You realize with horror that its the roof starting to go, or the plywood giving way, or maybe the metal carport being ripped off and flying around like some nightmare vision of hell. You huddle closer, then decide its time to go into the saferoom, your tiny bathroom where you have already stashed a mattress. Dad shouts, Get Mum under there, and you pull her from where she clings and help her under the mattress. The dog won’t come, he’s run away, but you can’t look because you ,too, are terrified. Shoving in under the mattress you hold tight to your Mom while the wailing wind, like a banshee, rips away your new addition like matchsticks. Dad, you scream, but the wind rips your words away, you hear yourself praying, begging for the storm to end, for your Dad, your Mom, your dog to live….but it just keeps going. Finally Dad pushes his way thru the door in a burst, soaking wet, holding the dog, you can’t see but feel the fur and smell its hot breath. Then Dad, swearing presses in with you, and you all silently cling to each other as the hours slowly tick past.

Later, after the wind subsides, you all find places to sleep, couch, bed, recliner, sleeping and sweating and grateful. Until daylight comes. And you see the aftermath…

What Do You Think

I think it is a challenge to live a solitary life. I don’t dislike it, but I reminisce  too much about sad events. It’s like my past has tentacles that slither out of the photo albums, out of the closets, out of the desks and cabinets to wrap themselves, insinuate themselves into my present. I spend days prying their suction cups off of my psyche, until I give up and just allow the octopus to swallow me whole.

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striped reflection

3 Hours Sleep and I’m Feelin’ Good!

Righty O! How about that Picture, huh? Oh, my…

.   That’s my “I’m so tired I can fall down right in this spot and sleep for a month” face. And it’s none too pretty. It’s also the most unflattering view of my nose…I was never unhappy with my nose until my Ex broke it . We were pretty high, and the cops had a roadblock we were going to drive past, and in my nervousness I didn’t realize he was just waving us around a broken down car. So I was going to stop and roll down my window, but that psycho husband of mine hit me with a right hook that I knew had broken my nose the minute it landed. Now with my nose smashed and bleeding and my lover screaming, “Just Go! JUST GO YOU STUPID @#$!%&!!” I rolled right thru the zone just praying that the cop would see my pain and lock my old man up forever.

.    Unfortunately, I had a long way to go with him, not only in miles on that specific trip, but years in marriage as a hostage to this monster. I cried and whimpered while he continued to berate me all the way to our friend’s house, at which time I ran into the house to pry my broken contacts out of my eyes, and ask for an ice pack. And a stiff drink.

.  The woman who lived there with her common law husband was no stranger to domestic violence, I had seen Jim go at her plenty of times when he was drunk. They had a 2 year old little tow-head named Gregory who I loved dearly, he came over with his blue eyes big with compassion, and said, “Bwoke?”while pointing his tiny finger at my face.

.  Lori took me aside while I was lameenting, “He broke my nose. HE BROKE MY @#$!&%!! NOSE!” and told me I should be taking pictures of all the injuries my husband had been inflicting on my person almost daily, I was too mad to listen, but years later I now wish I had. I guess the scars, PTSD and crooked nose will have to do.

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The Way I See Sue©STMartin

.  Anyway, I was still ticked off and full of the kind of courage that comes from straight whiskey, so I sat on the couch loudly lamenting my poor nose. That’s when Lori’s husband Jim looked at me laughing and said, “What’s the difference? You already had a big shnoz !!!”  My husband thought this was a riot also.

.  That was the day I began to hate my nose.

.  About 5 years after this incident, Lori and Jim were fighting again, and she came to us (well,  to my husband ) asking for help to buy a gun.  She claimed she feared for her and her son’s life,  Jim was “wild”and “dead set” on killing her. In our cocaine induced insanity, we went to a guy my hubby knew , and purchased a gun for Lori. Later that night, we met up with Lori in a Grocery Store parking lot. My Ex showed it too her, she had many questions. She purchased it. (By this time , after years of this woman’s unusual interest in my husband, I had learned to hate her. It turned out I had good reason to do so.)WIN_20200710_02_11_35_Pro_LI (6)

Approximately six months after the “transaction” my husband was  working with a crew of guys subcontracting welding for the Charleston  Naval Shipyard , and the ATF and FBI threw down on them all in our van while they were at the Shipyard . Lo and behold, little Lori, our “best friend”, had been wearing a wire during, not only the gun transaction, but in ALL the “meetings” she had with my husband. He had been sleeping with her for years, as I learned at his trial.

.  Well, he got 15 to life as a habitual  offender, I sold my hot rod 71 Mach One and his Harley to hire his attorney. After that I eventually made it to my parents home in Florida, got clean and sober and divorced jerk face. That was in ’02. He got out in 2011, remarried another womedan he had been cheating on me with. He died on February 7th alone at their home of a major coronary. And so ends that chapter of my incredible life.

.                             Crazy, man. Just crazy…WIN_20200720_06_43_02_Pro_LI (3)

SUSAN IS HERE! NEVER FEAR!!!

…there is no “wait until” time to be beautiful…

Everyone want’s to be pretty, or beautiful, I think. I know I was obsessed with the thought my whole life, and deprived myself of much happiness for what I thought was a severe lack of it. I had no sense of my own “looks” till about 8 or so, my parents told me I was pretty before that, and my Sicilian Grandma would pinch my cheek and say , “Bella, bella!!”

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Baby me in my favorite coat

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the artist, poet, writer, and survivor: S. T. Martin

Then, one summer day, my Mom decided to enter me in a local child’s beauty contest…She started by fussing with my hair. I was busy digging up bugs or something in the yard, so her newfound interest in me was a bit unsettling. I was an obedient child, so I let her fuss and fiddle. I remember it being spring, and the yard was full of bird’s chirping and golden light. Mom was in a good mood initially, then she asked me to sit a certain way on the back porch, and she whipped out a camera. Well, that seemed fine, and I asked her what the occasion was. Oooh, a little contest, and you are going to win! This made me more agreeable, initially.flower girl Susiejpg_LI

.  The session took quite a while, and Mom wasn’t satisfied with the efforts, so we kept pressing on. I think I must have gotten too fussy, because I don’t have any warm fuzzy feelings attached to this memory. I just know we got thru it somehow, and I went back to my scientific bug experiments.

Weeks passed, then excitedly the local gazzette prints the photos for review. All the other girls had their hair in pigtails with ribbons, lacy ruffled collars, some even had little dot earrings, or a pretty necklace. We raced thru the names to my photo…oh…my photo. Here was a ‘new’ look! With half of my little face in shadow, you could see right away that Mom hadn’t had the right lighting. Or maybe it was the bipolar side showing up even then!!! More than that, though, I was wearing just my favorite tee shirt, and my short “pageboy” haircut was in stark contrast to the other, pretty, girls. No necklace, no cute little dot earrings. And no prize.WIN_20200710_02_13_14_Pro_LI (4)…Sigh… Mom was more upset than I was initially, I had never compared myself to other girls before that, as I recall. I do remember Dad criticizing her photo-taking ability, as he conitinued to do for the rest of her life, and thereafter for a good portion of mine(till his death!). There were rumblings inside the jealous side of my psyche, the newspaper had it all there in black and white : Susie is different. You would think that would be a good thing for a little tomboy like me, but I did not like the way it felt.

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The Way I See Sue©STMartin

.  And I really hated having my photo taken, for a long time since. But now that I am past childhood, even the one that lasted till I was 40 or so, and now that I have a wonderful electronic device to photograph myself, I like to. From time to time I get really down on myself, and I am afraid I may turn into my Mom, who would gaze at herself in the mirror and say, “I’m so ugly.”  When I found her doing that it made me cry , for her, and get angry, for me, because I am her identical twin!!!  We are all beautiful.

.  Make sure you hear me: we are all beautiful. All of us, all the time.

There is no “wait until” time to be beautiful…until I lose weight, until I get a tan, until I grow up, until I get some body changing, unnatural surgical procedure. And you don’t lose your beauty when you age, either, so don’t fall in that rut. Or try not to.

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My New Braveheart Girl Hairdo (remember Mel Gibson’s Mullet?)

.  Be gentle in your assessment of your appearance, don’t judge yourself by peering at your reflection from 2 inches away. Everybody has enlarged pores from that distance! And scars? Honey, I have scars if you wan’t to compare them sometime. From acne, to road rash due to jumping out of a moving car, to adult chicken pox that were even in my mouth and on my bottom as a 40 year old….to all my surgery scars and beatings I received, chipped teeth and all, even the scar where my husband stabbed me, or the ones on my neck when he strangled me unconscious. Yes, I have scars.But it is really true: What is on the outside is of no importance. Some may say, that’s easy to say if you are beautiful, but what if you are disfigured? I watch alot of documentaries, and one of the recent ones was about the Young woman some years ago who had her face torn off by her friend’s pet chimpanzee. This woman was nearly dead when help arrivived, and her story is a traumatic one.

.  But her daughter just says it all when she says that she used to not believe those sayings that “what is on the inside is what makes someone beautiful”, until she was with her Mom again after the accident. Her Mom is so beautiful, without a face, or hands, her inner strength and love prove the old saying true. If you are strong and can watch stories like that she really is an amazing and wonderful example to all.

.  So, finally, when I was bumming out on my looks the other day, I kicked myself off the couch, put on some colorful makeup and clothes and had a silly photo shoot. It really was nice, in this isolation, to just have a play day. And the fun wasn’t over after the pictures were taken, then I had more fun editing them until I really thought , ” I amWIN_20200710_02_12_37_Pro_LI (3) pretty!”

P.S. I did mention the make-up and photo-editing, didn’t I?

THE PAIN of it ALL

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What do I say to a black mother whose son was murdered at the hands, or knee, of a white man?

.   I saw George dying, in front of all the world, murdered. Every fiber of my being cried out for action to save him, knock that cop off of him, hurt those who were hurting him, scream “STOP!!!!!” at the loudest volume my wind and stretching vocal cords could scream. I saw him die. I could see the actual moment the life left him, we all could. His killer’s arrogance galled me, I cried as if George was my own. Those awful, endless minutes are now emblazoned on my conscience, and the world’s. But George’s suffering was finally over, the pain had ended for him. His family’s pain goes on.

.    My daddy died unjustly, and it took years for my anger and pain to subside. But, then, I am white. And it wasn’t a police organization, or even a police man who killed him. For me it was a hospital, who killed him just as surely as if they kneeled on his neck. And he was a Sicilian man, very dark complected, 1st generation borne of immigrants to this country, but I suppose he will be considered a “white” man by history.

.   But the pain I felt is the same pain George’s loved one’s feel in this sense: there was death, it was not natural, there was injustice, and there is anger. I feel it now, these years later. I was righteously indignant, I loved my daddy more than any girl ever loved her daddy, ever in the whole world. Whole universe I thought. I never saw his flaws, he was a hero to me, and they murdered him, and someone had to pay. I had to make it right , for him. For his memory.

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Another Day in Paradise

.   They hated me at that hospital, I believed. They had been out to get him, because we were poor, and because everyone knows doctors and hospitals only want one thing, right? Money. And we all know that there are very baaaad people in the medical field, there is a long, very, very long history of distrust in the Sicilian immigrant community against the “establishment”. It carried down from tyranny and mafioso, in the “home” country, where my ancestors were murdered and enslaved and oppressed by terrible injustice. Not only was the regime murderous and corrupt, even the local officials were, requiring payoffs and inflicting gross injustice and physical pain on the poor people who were supposed to be under their care. They had no choice, starve, be murdered, or board ships of misery with their last pennies to try living in a beckoning land across the great sea.

.  My granparents had experienced the ghettos in New York when they arrived, cramped, dirty, unlit, no facilities, living in dark, dank, freezing, stinking tenant housing in their new country. Now, instead of their tropical isle, where they knew the enemy, there were new enemies to contend with. Such hatred, such predjudice, such injustice, such poverty. All these conditions shaped the mentality of generations, the distrust of the “system”, the lack of eqaulity, the oppression…

.   My father was an angry man. For as far back as I have memory, he was mad at what he perceived as injustice in government. In another age pehaps he would have been a radical, I dont know. But he worked so hard, all his life, had  access to more education than his parents ever had, served in the military and was able to move to Florida in his early 50’s. which had been his lifelong dream. He never stopped working, even then, and I had everything I needed as his kid, except love. But I adored and idolized him, to my mother’s dismay. When I became his sole caregiver, he was my child, and I determined to never let anything bad happen to him. For all the grief I had put him through in my life as an addict, now that I was sober I would appease his every whim, and ease his Dementia and Alzheimer’s. He was my reason for being, for except for my dear shih-tzu’s I had lost everyone in my family, and had no children.

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Always a Dapper Dad

.    I was a she-bear when it came to his care. Endless research, talking to pro’s and others  on caring for the elderly. But no matter what I promised him, no matter how good I cared for him, and no matter how totally committed I was in my devotion, I was not able to save him from being killed.

.   So, then. What can I say to the millions of traumatized, oppressed, angry people who are fighting right now? They will do what they believe they must, to find relief for their anger. But to the loved ones of a man who died unjustly, there is something I can say, even in my proverbial “whiteness”:  I am so, so sad for you.  I can relate. I can relate to the sickening feeling in your gut, that horrendous hot ball of lead where your heart used to be. I  remember the anger, the absolute bursting feeling of helplessness, the burning knowledge that this should never have happened to your child, your son, your daddy, your husband, your brother, your uncle, your nephew, your cousin, your dear, dear friend. Your Beloved.   

.   My pain was real… Your’s is all too real right now. I will never question your pain, or think I know what you should feel, or do. I never want to exaccerbate your suffering. everyone grieves in a different way, for different lengths of time, for different reasons. there is never a right or wrong way to grieve. I wish you peace, someday…healing…a lessening of this great burden you carry.

.   My anger  was only relieved by my learning the true reason for death, suffering and in justice. Knowing and believing in the the knowledge that God will soon do away with the true source of the evils we experience as humans. the tormenter of us down thru the ages, all the way back to the garden of Eden. The father of the lie, Satan.

God had an answer to Satan’s lie right there on the spot: Jesus Christ, God’s Only-Begotten Son and The King of God’s Kingdom would crush Satan and throw him and all his cohorts into the Abyss!! It will happen very soon, when God says it is time! Then the words of Revelation will come true!

Revelation 21:3-5 reads:

.  ” With that I heard a loud voice from the throne say: “Look! The tent of God is with mankind, and he will reside with them , and they will be his people. And God himself will be with them.(4)And he will wipe out every tear from their eyes, and death will be no more, neither will mourning nor outcry nor pain be anymore. The former things have passed away.”

(5) And the One seated on the throne said:”Look! I am making all things new.” Also he says:”Write, for these words are faithful and true.”

.   Such beautiful words…a beautiful dream, perhaps? No. A promised reality from our God who cannot lie, whose purposes always succeed, and whose prophecies always come true. I have a favorite scripture about the surety of all God’s promises coming true, maybe because I am a farmer at heart, who has always loved the rain.

.   This is in the Bible book of Isaiah, in Chapter 55, beginning in verse 8: “For my thoughts are not your thoughts, and your ways are not my ways,” declares Jehovah. (9) “For as the heavens are higher than the earth, So my ways are higher than your ways, and my thoughts than your thoughts. (10) For just as the rain and snow pour down from heaven And do not return there until they saturate the earth, making it produce and sprout, Giving seed to the sower and bread to the eater,(11) So my word that goes out of my mouth will prove to be. It will not return to me without results, But it will certainly accomplish whatever is my delight, and it will have sure success in what I send it to do.”

.   Yes, The Creator of the entire Universe has everything taken care of, he has told us that he will be the only Judge, and His Son will carry out his Judgement.  The Ride of the Four Horsemen is already well underway.  One day soon our dead loved ones will be resurrected and what joy there will be, when this earth is finally free of evil and we will live forever in peace.Artwork and Pictures 056

.  Please take the time to learn what the Bible says, I want you to have the peace of mind and heart that I finally found. It is not too late, my friend.

Trying to Grieve

Whew, this is a toughie. Daddy died March 7,2016, and I know how you all have followed our journey. He was such an amazing man, and a great father(despite minor glitches, like most dads). But for me, he was my world in these last years. The reason I got up in the morning, the reason I stayed up all night. He was my dearest friend, after we lost Mom, and he was my child in so many ways.

It all comes full circle, first I am a child, they wipe my dirty nose, dirty butt. They watch me grow and change into some sort of adult, full of foibles, full of flaws. But also full of amazing acts of genius, and supreme acts of love. Sure, there is anger, and dysfunction, but the parents learn to accept, to forgive, and to love unconditionally.

Then, almost imperceptibly the roles change. The forgetful Mom, the Dad with a hitch in his step. The Child picks up the slack, a little extra help here, a mental nudge there. Then just as if it is a life running backwards, the needs grow, and the caregiving roles become more and more diverse. Take the folks to doctors, look closely to see if the take their meds. help them navigate with a cane, walker, wheelchair-just like they taught us to crawl, hold onto tables and then finally stand and walk.

I led my Daddy back to his childhood, back through his memories. I tried desperately to keep his dignity safe from pokers and prodders, from nurses shouting in his face and grabbing at injured hands. From nakedness in freezing hospital rooms, holding his water, feeding him jello. Making them listen when “MY DAD NEEDS SOMETHING FOR PAIN!!!”Just like he did for me, a 2 year old in an emergency room 50 years before.

But I want to shut those memories away now, the one’s of his suffering, the one’s of his dying in my arms, just the 2 of us here. And the memories of the big silence that seemed to fall over the house the second his last breath escaped. My Daddy, my dear friend, dear father, it is so hard to say goodbye.

I know like a fire burning deep inside that this is not the end of our togetherness. No.

You are sleeping a dreamless sleep, the kind you always wanted, when your mind would not let you rest. You are experiencing no pain, no turmoil or fear, no loneliness. You are in the safest place in the Universe, the Memory of our God, Jehovah. You are sleeping there and so is Mommy.

So are all our loved ones who have died. Jehovah, the God of Eternity is keeping all your hopes and dreams, loves and desires safe, as well as every aspect of what makes you you. And I thank Him for this knowledge, that He so freely gives in the pages of the Bible.

Mostly though, especially during this day, when 2016 years ago He let his perfect, only begotten Son, Jesus Christ lay in a tomb, tasting death for every man. Jesus had been tortured and murdered as a common criminal, nailed to a stake and left to die, he had been spat upon, laughed at, beaten and suffered at the hands of his enemies. And his heavenly Father, Jehovah, let this happen.

Why?

So that all of us, all of mankind, whether good or bad, can be forgiven of all their sins. So that all of us, all mankind, can have a chance at everlasting life. That all of us, all mankind, can join together as a family under Jesus Christ rule as King of God’s Kingdom.

Tomorrow will be the day 2016 years ago, when Jesus was resurrected, and that act, my friends, that wonderful act God performed all those years ago, is proof positive that Jehovah can and will resurrected our loved ones who have died.

To me, this is what will help me grieve, moving past the sadness of my father’s death. Because by Jesus death, all will be made alive!!

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Grief and Bipolar Disorder

Let me start this blog off by saying that I am not a health care professional, nor am I licensed in any form of mental health capacity. All I am is a person in pain, having lost a dear loved one, and who also happens to suffer from Bipolar Disorder.

So, in a sense, that makes me an expert of sorts. I say that in a lighthearted way, coming from a heart that is anything but light. Ever since Daddy died I have been running in circles, like a dog chasing it’s tail. Somehow, I am dealing with each necessary task: the funeral, the cremation, the memorial, filing for assistance for myself since Dad supported me in my disability, cleaning up all the evidence of his sickness and dying that were left here in the house. It feels like being in the center of a hurricane.

Knowing that I will soon be back in the raging storm, only this time I will be alone.

In my manic state right now, I cannot sleep, cannot rest. I either forget to eat, or I eat the wrong things in the wrong quantities. I baked a cake and cupcakes last night at 11:45, then ate 3 cupcakes before lying down. No wonder I did not sleep, right?

I keep getting up, in a half asleep stupor, thinking I have to check on him. Then I wake up sitting at my computer at 4 in the morning, all crooked and stuck like a pretzel. Once the other day I fell asleep on my face with my glasses on, and they had embedded themselves into my head. Not a nice way to awaken.

But the endless cleaning, and going from room to room carrying the strangest things, and the inability to breathe normally are also very disconcerting. I have the feeling of impending doom, the one I had for years in active addiction, the feeling that came back when Mom died in 2010, the feeling that follows me like a shadow. It keeps telling me that I am all alone now, that there is no one to love me, or hold me anymore.

It is a terrible, sad feeling, and my head knows it is not real. God loves me, and will NEVER forsake me. I am in a cloud of witnesses, all loving Jehovah, and He has tight hold of my hand. So-leave me alone, terrible darkness! Stay at bay, awful sadness!

Please God, help me have soundness of mind, help me to have a quiet heart, a hopeful spirit, and faith sure and strong!! I know that you hear me, in the name of Jesus.

I am loved, and I am safe. I will never walk alone!

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Loving Too Much?

I have been my Dad’s Primary Caregiver for over six years now, and I was Mom’s before that as she battled and succumbed to colo/rectal cancer. It has been a long road, hard yes, but also full of love and tender moments that I treasure.

Dad has been relatively pain free all his life, always proud of his fine health and “dancer’s body”. He says this in a swaggering tone, referring to days long, long ago when he Tap Danced in department store windows and on street corners. Probably around 1936-39. he also has battled worsening Alzheimer’s and Dementia, which is severe now. But , like I said, no real pain except minor aches from time to time.

Fast forward to today. He has declined so rapidly in the past few months, not eating, not getting out of bed, sleeping all the time or staring out in space. Worst of all , though, is this pain. Dad is suffering, and now I fear he will be taken away from me. If that is what has to happen for him to get relief, then I have to do that for him.

It is his hands that hurt him so bad now, and after a doctor visit, xrays and a trip to the emergency room yesterday, he is said to probably have cancer that has metastisized to his bones. The problem is his insurance now.

He has been waiting since the 4th to get the referral he needs from his Primary care Doctor. An 88 year old Veteran who can’t get a simple referral to an oncologist? I am about to get fiesty with the Doctor. I used to be a violent person before God changed me to a peace lover. But when my Daddy is threatened I am like a mother Grizzly.

I hope none of you have to live through these issues in your own life. If you do, try to squeeze every good, kind, loving remembrance out of each moment with your loved one. Even when the are hurting and cranky, even when they don’t recognize you or seem to like you at all- keep squeezing. It is God’s foremost attribute, and when we aspire to love and care for those who are our own He showers His Love down on us. It covers a lifetime of Guilt and broken dreams.

I love you Daddy, even when you don’t know it.

 

Where Am I?

The life is Busy, life of a caregiver. It revolves around his existence, the ebb and flow of his life force. He gets out of bed later each day, goes to bed earlier, communicates less, gazes dimly ahead more often.

He wants to eat less, if ever. Sleep overcomes him in an instant, no matter what we are doing. His face fades into blues and purples when he sleeps. His mouth droops, and I desperately look for his breathing, letting out my held breath when I finally discern the rise and fall of his shirt.

Sleep escapes me. I writhe. Only to be spat out of me bed at 5 am like a broken pretzel. A broken glass pretzel.

I will stop for now. The pain wins again.more self portraits 028

A ONE HANDED ENTRY

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mommy with her sisters, before we knew she was sick.

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mom and me at a JW Convention
mom and me at a JW Convention

this is tough, this being me.

i say all kinds of euphemistic things:

endure, be brave, be faithful…

a memory stirs,

i am back to missing you.

i am glad you are not suffering.

i am glad the pain is gone.

but here i am left,

wondering.

how do i carry on?

my life is like typing one-handed,

always swimming uphill

with one broken paddle, one broken pencil,

one half of one one-dollar bill.

i remember the days of our freedom

the two of us crying and laughing at once!

sipping our vodka tonics and talking like schoolgirls

till we were tipsy and high.

your kneecaps jumped up and down,

so i put you to bed,

worried that i somehow harmed

those beautiful knees.

they parted to give me birth,

but i don’t feel alive.

the sunlight changed the day you died

left me all dim and damaged inside.

now my life is like typing one-handed.

always swimming uphill

with one broken paddle,one broken pencil

and one half of one one-dollar bill.

my relief is coming, the shining day

you will return to me-free from any disease

it is our God’s promise to us!

the world will resound with our laughter,

our brothers and sisters will join in

we will all be perfect and no one will die,

not ever, no

never again.

i wont have to type one handed,

no more swimming uphill.

no broken paddles, no more broken pencils,

no need for one-half of one one-dollar bill!!!